Sunday, February 10, 2013

Depressing Post- sorry!

I apologize at the start of this blog post. It will be ugly. Sad. Angry. Frustrated. Bitter. I have been holding in my grief alot for what I am dealing with. I go through most days with silent tears. With my depression wrapped up in the same blanket I am hiding in on the couch. I go through the motions. I make breakfast for kiddos. I play with Carter. I do a load of laundry or clean up the kitchen. I do it all with an internal dialogue that includes "why me" and "life sucks."  I smile. I push through most of the sadness when others are around.
I am not sure why I do this. Somehow I feel like I am expected to be happy that this cancer will not kill me. That I will see kiddos grow up. I will be at graduations, weddings, births of grandchildren. I am grateful for all of that. Yet, it doesnt change life now. I am still dealing with cancer. I am still fearing more surgeries or facing a week at a time away from my kids. You cannot imagine the grief of sitting in a room and hearing life continue around you... kids crying for mom, laughing with a movie on, eating dinner.... and you cannot be even a little part of it. Why can't I be? Cause I am radioactive. A treatment that has shown connections to future lymphomas if you have had high doses. I will have my second round of this treatment in the first six months of treatment for a cancer that is chronic. Do you hear that? Chronic. This is one of those cancers that will be with me forever. I will have months and years possibly where it is not there but odds are it will be back. It has something like a 30% reoccurrence rate, and that is if you have simple papillary cancer. I have a super aggressive form. I will most likely face more surgeries. More radioactive treatments. Blood draws every 3-6 months. Yearly scans. Yearly low iodine diets. It will not end for me.
So, I have this feeling of needing to "suck it up and move on."  I cannot grieve in public. I hate being the "cancer wife." I hate that I am in a new state with no support system. When I was first diagnosed- I was surrounded with love. If I was having a hard morning- I walked next door and cried on Melissas sofa. If I needed a break from life- I had people to take my kiddos. People who loved and adored my kiddos, and vice versa. Here- nothing.
I come to this blog to say what is in my heart. I did that at first with this diagnosis. Then, I stopped. I stopped because I did not want to lose followers cause I was depressing. I mirrored on my blog what I did in normal life. I hid my feelings and smiled (or blog hopped) as thought nothing was wrong. When someone asks me how I am... I answer with a smile and "I'm good" "things could be worse" "this wont kill me" sort of answers. I reassure them. I reassure THEM.
How am I really doing? I am dying inside. I have no one to go to on hard days. I feel a distance from Lee because life has brought this stress into our lives. A lot of nights- I am in upstairs and in bed by 8.  When he gets home- we do dinner and I disappear. If it was up to me, most days I would hide in my bed all day long.
Know what sucks? Being sad over this and then feeling guilty too. I feel guilty that my kids have lost their mother in all this. I am not the same person I was 6 months ago. I would love to say that cancer brought me this new zest for life. That I am grateful for everything now. That I live life to the fullest everyday. Not true. I am a shadow of myself. I have no energy. I am depressed. Guess who suffers? My family. My family gets the leftovers after I spend all day smiling and acting though nothing is wrong for everyone else. So, tack guilt on to my list of adjectives for this last six months.
I have been approached by friends in the last few years over things I have said on my blog that hurt their feelings. I cannot apologize for those words. Honestly, this is the one place I can be myself on thsoe days when I finally face the things I feel. I do not face them often cause it is not my style- but when I do, like today, this is my safe place. Some may judge me. Or decide our friendship cannot withstand my blog posts. That would make me sad. But truth be told, I need this blog. I need these posts. I know that they do not make everything better when they are done. I still have cancer. I am still one week away from finding out what comes next. Last time I had an ultrasound- I could not understand what was being said (in a German hospital) but I knew it was bad. I was right. It told us that my cancer was advanced and worse than we thought. I faced that alone in a hospital on lockdown from radioactive iodine. This time- I will face it alone. Again. In a Colorado hospital. And I will once again, put on a brave face and then cry in private.

5 comments:

Jennifer said...

You are going through a lot and have every right to feel however you want about it!!! No one is in your shoes but you! Hang in there girl and keep blogging! It's a great outlet!

Beth W said...

Have you considered joining a support group? It might help, if only to have a safe space to vent the frustrations and grief, with folks who truly understand what you're going through.

Chelzz said...

I don't know you and I'm not even sure how I stumbled on your blog but what I've read is real raw feelings. You're going through some tough stuff and without support I couldn't even imagine. I'm so sorry for all of that but I really thinking blogging is great. I love reading about real life and being able to connect and help any way that I can. I hope you find some encouragement and some strength through letting it all out on your blog. You sound like one tough lady!

Anonymous said...

Or some may just cry with you. Don't ever apologize for being real, you teach and inspire more than you know, even through your hardest days. My thoughts and prayers are with you, always in my heart. Just remember... You got this, but it is ok to feel like you don't.

Jamie Severt said...

I am so sorry Brenna! I wish I was already in Co (I am very optomistic we are going there..lol) so you would have a friend. Its funny but I see life as a standstill why I am here...for me, I get so depressed over it...I just want to be back in the states that sometimes I feel guilty for how I am. I know that in no way is the same as having cancer but reading your post I can relate to some of your feelings of depression. I am so sorry you miss Germany and you are going through this. I hope you meet some new ladies soon...my friends and family are the only things that get me through this place sometimes. Hugs...oh and email me pls! Jmedrew@msn.com